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Ehlers-Danlos Syndrome and Social Security Disability

On Behalf of | Jan 10, 2020 | Social Security Disability

Ehlers-Danlos Syndrome (EDS) is a cluster of inherited genetic disorders that cause problems with a victim’s connective tissues. Since connective tissues involve multiple systems in the body and affect the skin, bones, heart, blood vessels and more, the defects caused by EDS can range from mildly uncomfortable to outright disabling.

EDS is not a new disease — although researchers and doctors are still learning about its various forms. It’s often vastly misdiagnosed, usually as chronic fatigue syndrome, fibromyalgia, depression and the like. Victims often suffer from:

  • Severe joint pain
  • Hypermobile joints
  • Joint instability and dislocations
  • Dizziness and falls
  • Chest pain and palpitations
  • Autonomic dysfunction (leading to trouble with the heart, intestines, bladder, sweat glands and blood vessels)
  • Chronic gastrointestinal problems
  • Fragile skin that heals poorly
  • Easy bruising and bleeding
  • Abnormal scarring
  • Urinary tract infections
  • Prolapsed organs, including liver and kidneys
  • Depression and anxiety (often aggravated by pain)
  • Vision problems

Like many other genetic disorders, Social Security does not mention Ehlers-Danlos Syndrome in the “Listing of Impairments” (or “Blue Book” of qualifying conditions) that it maintains — but that doesn’t mean that your claim is hopeless.

Because of the diverse nature of the symptoms that EDS can cause, you may qualify for benefits in several different ways. For example, if your spine and ability to walk are affected by your EDS, you may qualify due to those limitations. If you suffer from chronic skin infections, that may meet one of SSA’s listings.

Getting approved for Social Security Disability for Ehlers-Danlos Syndrome can be difficult, but it isn’t impossible. If you’re struggling to get your claim approved, find out how experienced legal assistance may help.


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